Is this forum relevant and helpful to those actively psychotic? What are your thoughts?

I’m not sure it is much.

I know it is helpful for those recovering. It offers kinship and information and maybe helps recovering sz to not become psychotic again through lack of meds or whatever.

I think it is also for those that have some lingering delusions but are mostly ‘in reality’ with the majority of their thoughts.

Where my doubts lay are in those that are floridly psychotic. THe conventional, one on one, method for helping these people is to not directly challenge delusions and earn trust and whatnot.

However, here, in a group setting not challenging delusions or agreeing with them, the thinking is, has the potential to have them spread among those that are suscepticle to such here and/or trigger them. I’m not sure a working pdoc could figure out the proper way to handle this in a group setting like this, let alone those of us (all of us here) who are not.

A peer support forum is probably not the place to be very helpful to those that are floridly psychotic.

This is primarily a recovery forum, I believe, which lends itself well to those that are recovering and those with limited, lingering delusions but not for those that are actively in major psychois beyond maybe some friendship.

What are your thoughts?

5 Likes

Hi, please include the psychotic. They need help too and it reminds others why they need help as well. I felt unwell yesterday and someone here reminded me how important medication is and I feel really grateful.

4 Likes

I have no intention of not including anyone. Just wasnt sure how much it helps those who are actively psychotic.

I am happy to hear this :slight_smile:

2 Likes

Thanks so much. I really appreciate it here!

2 Likes

It was helpful to me to get support here when I was in psychosis a few months ago. I still have lingering symptoms and appreciate all the support I get. :+1:

5 Likes

I am glad to hear that as well @Dika . Maybe it is more helpful than I thought when in psychosis. It is certainly a difficult tightrope to walk for those of us trying to help, though.

3 Likes

I think this forum can be helpful to those that are actively psychotic.

It just depends on the person.

2 Likes

No. Nothing helps while in psychosis.

In the past, years ago, on the old forum, I used to write hymns to paranoia in my psychosis. People were saying “call your pdoc”, “please go to the hospital” etc. but nothing could persuade me that I had a problem

1 Like

Idk I’ve posted some paranoid sh!t while psychotic and been helped before but usually when I’m psychotic I’m too sick to use the forum

1 Like

When I first came here I knew very little about anything to do with MI despite being hospitalised several times

Learning about the side effects of meds and what symptoms were helped me a lot

The times I saw doctors etc I was so out of it to understand what was happening to me

I learned to advocate for myself

2 Likes

It also depends on the severity of the psychosis

7 Likes

It can. People often become deeply socially withdrawn in sz, so would lack interest in using a forum. Over the years of using the forum I have become withdrawn at times and had little impluse to interact. It has been said before that the forum geneerally caters to higher functioning szs. If someone is functioning high enough to use the internet, meaning they are organized, interested, thinking with intent, not prohibitively paranoid of technology/ others etc, then the forum kind of exists for whoever gets past that natural 'screening" process. The forum can help those who can be helped ultimately, I think.

5 Likes

I started to use the forum long after a psychotic episode so I don’t know if it would have helped me to use the forum while having psychosis

But it helped me to see similar stories and when I’m not ok to have support

I would have liked to know the forum before when I was struggling the more because I didn’t know who to talk to and felt like I had enemies everywhere

I would have felt less lonely if I had somewhere to talk

2 Likes

I think the short answer is sometimes :thinking:

1 Like

it can be a life line, so many times i’ve seen people on here were on the brink, i think having friends helps

7 Likes

I’m always psychotic but I am stable in that state.

4 Likes

[Active psychosis is the acute phase of a psychotic episode where a person temporarily loses touch with reality. It is characterized by severe symptoms such as hallucinations (e.g., hearing voices), delusions (strong, false beliefs), disorganized speech, and highly erratic behavior. It is a symptom of an underlying medical or psychiatric issue rather than a standalone illness.]–NIH

Based on the definition of active psychosis by the National Institutes of Health (NIH), I don’t think this forum will be helpful to a person who is in active psychosis. Also, I think the mental health and safety of all of the members on the forum has to be taken into account when trying to help someone who is in active psychosis.

I wish we could help everyone, but we cannot.

4 Likes

I try to not talk about my sz irl so I talk about it here. I try to completely forget my sz and never talk about it even here but still can’t. I have no positive symptoms on meds unless I lower my dose.

5 Likes

It’s hard to re gain life as it is supposed to be on here all the time

3 Likes

There are a couple on here still residually psychotic…not naming names…they do the best they can.

1 Like