After how much time did you get tardive dyskinesia?

I am afraid of permanent td. I am on 8mg risperidone again recently. It has high td risk. I was was on 6mg before but was on 8mg 10 months ago and had muscle twitches in my face which disappeared after dropping to 6mg. I read its an early td symptom. 8mg has similar td risk to Haldol 20-30℅ over 10 years, its already been 6 years on risperidone.

After how much time did you get td and what med and dosage?

My family is telling me having td is nothing compared to dangers of psychosis

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I developed severe TD after 3 years on 100mg of Loxapine. Instead of taking me off the medication my pdoc prescribed Ingrezza to help. Which it did not help. I finally got off Loxapine fully last April(2025) I’ve been off it for a year and my hand is still disabled(It caused muscle spasms in my left hand impeding on my grip strength and dexterity). I still take Ingrezza, but I am disapointed I haven’t noticed much of an improvement in my hands, the facial twitches and tongue movements did start to improve though. I’ve seen probably 50% progress there

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Thats great, hopefully more improvement in the future. What med were you switched to that helped reduce td risk?

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Well I stayed on Geodon. Because i was taking a combo of low dose Geodon and high dose Loxapine. So when I came off Loxapine we raised my Geodon to a therapeutic level

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Yes Geodon has low td risk. My dr doesn’t want to prescribe it because its not as effective as my risperidone and because it needs to be taken twice a day with 500 cal.

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Yeah Geodon isn’t as strong as like Zyprexa or Risperidone, but at a high dose (80am and 80pm) it controls my symptoms well. I can’t take Risperidone because of elevated prolactin levels

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I get worried about this condition too because I take 5mg haloperidol and wonder if it’s going to cause it in future. At my outpatients Dept I sometimes see an elderly lady there with it, how her mouth makes involuntary movements and i felt so sorry for her that she couldn’t control it. I’d hate to be in that position

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I’ve had strong antipsychotics at strong doses for 32 years and haven’t gotten TD yet.

I was on Ziprasidone (160 mg -240 mg) for 19 years.

With

Seroquel (300 mg -900 mg) for 14 years.

With

Clopixol depot(400 mg every 3 weeks - 300 mg weekly) for 30 years.

No signs of TD or what so ever.

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Few years ago, I was sticking my tongue :tongue: out all the time. It was embarrassing.

It passed, fortunately.

But now i jerk my head, usually to the right.

It must be TD.

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I think vulnerability to TD is expressed in the Genes. So a few will go through life with no TD.

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